Monday, June 24, 2013
I have decided that this will be my final post. Now that Noah is four, this is no longer my story to share--it is his. I look forward to the day I can share this blog with him and Hannah.
I want to send a spacial thank you to the many families of newly diagnosed children who have contacted me through this blog. Your emails have inspired me to continue this blog far longer than I ever originally thought I would. I am happy that Noah's story has provided some hope in an otherwise seemingly hopeless and dark time.
Earlier this month, Noah performed a song on stage with his class for his last day of school. The lyrics are beautiful and have a deeper meaning to me after all we have been through. The lyrics that Noah sang seem like an appropriate way to close his blog:
See me beautiful,
Look for the best in me.
It's what I really am,
And all I want to be.
It may take some time
It may be hard to find,
But see me beautiful.
See me beautiful,
Each and every day.
Could you take a chance?
Could you find a way?
To see me shining through
In everything I do
And see me beautiful.
(See Me Beautiful, By Red Grammer)
For those interested in learning more more about infant and pediatric stroke, please visit the Children's Hemiplegia and Stroke Association website (www.chasa.org) or you can contact me directly at email@example.com.
Monday, April 2, 2012
Noah joined his big sister at preschool last week! It is hard to believe that he is already 2.9 years old and eligible to start school. Not surprisingly, he marched right into school with Hannah by his side for support. The attached pictures are of Noah the morning of his first day of school and pictures from a recent trip to an amusement park. Noah is an energetic, extremely talkative and well-adjusted child. He loves riding his bike and anything related to sports and race cars. Our path has been challenging and certainly vastly different than we ever could have imagined, but Noah continues to amaze us.
I am sorry I have not updated this blog in almost a year. Since his second birthday, Noah has continued to receive speech and occupational therapy through our early intervention program. Although he does not present with delays, he qualifies for services because of his diagnosis until he turns three. We have felt from the beginning that we need to push him as much as possible to take advantage of the neuro-plasticity of his developing brain. In addition to weekly therapy, he also takes gym and music classes and we have recently added a weekly swimming class. Each class serves a therapeutic purpose.
Thankfully, Noah continues to remain seizure-free. Although, this past year there have been several scares. Thankfully, we have a great neurologist and epilepsy neurologist and they were able to rule out any seizure activity. Unfortunately, because he has a brain injury, there will always be worry. I try not to let it consume me, but there are days when it is difficult.
Noah will stop receiving services through our early intervention program in June when he turns three. Since he has no delays, he is not being recommended for services beyond June. It seems strange to think about a time when his therapists will not be involved in our lives, but knowing that he does not qualify for services is incredible. We will remain diligent about his development and he will continue to be followed by the therapists and doctors at the stroke clinic at Boston Children's Hospital.
I will begin updating this blog again with a bit more frequency. I hope Noah's story is helpful to all of those families just beginning this journey. As always, we thank those of you who continue to check-in on Noah and our family.